Hellenic Friedreich’s Ataxia Association Hellenic Friedreich’s Ataxia Association Analipseos 7, 54643 THESSALONIKI, GREECE +302310869162, +306944383987 [email protected] HEFAA website: www.hfa.gr Who are we The Hellenic Association for Friedreich’s Ataxia was founded by both parents of patients and patients, suffering from this rare, neuroparalyzing disease. Our goal is: To help cure the disease and to ensure equal access of all patients to it. We will achieve this by: Showing and sensitizing audiences to the issues and difficulties of people suffering for Friedreich’s Ataxia at a national and international level. Backing up the state’s institutions so they can implement all modern, scientific advances in the diagnosis, prevention, experimental treatments and cure of the disease. Aiding and stimulating the timely import of effective treatments of Friedreich’s ataxia patients in Greece. Our Vision Our vision is one of a world free from the destructive disease of Friedreich’s Ataxia. Our actions aim to serve the needs of the people suffering from it. We hope that we can turn this disease that has and continues to affect us all, into hope. Our Values The value of life is our ultimate guide in our constant efforts to change the natural course of this disease. We believe in both the individual´s and the scientific research´s power. We value the people that choose to be with us and participate in our efforts. As Friedreich’s Ataxia patients’ life expectancy is set on the second or third decade of life, every day counts towards our Association’s fight for our members’ well-being. Hope strengthens our fight.