Governance

Our Constitution

Click here to view the Euro-ataxia Constitution.

Euro-ataxia is a registered charity in England and Wales.
Charity No: 1149330
Company No: 8187765


Trustees of Euro-ataxia

The majority of our Board members have a personal connection to ataxia and/or work for ataxia patient groups, giving them a strong insight into ataxia patients' perspectives and allowing them to represent their best interests.

President: Andreas Nadke (Deutsche Heredo Ataxie Gesellschaft)
Secretary: Sue Millman (Ataxia UK)

Board members:
Stéphan Rouillon (Association Française de l'Ataxie de Friedreich)
Juan Carlos Baiges (Fedaes)
Bart-Jan Schuman (Friedreich Ataxie Förderverein e.V.)
John Gerbild (Foreningen for ATAKSI HSP)
Vassilis Karatzias (Hellenic Friedreich's Ataxia Association)
Carlos Neves (Associação Portuguesa de Ataxias Hereditárias)
Tomer Hillel (Israel Machado Joseph Association)

Scientific Advisor: 
Julie Greenfield (Ataxia UK)


Annual Reports

You can view our annual reports below:

Annual Report 2022-23
Annual Report 2021-22
Annual Report 2020-21