Euro-ataxia works in close partnership with a number of other ataxia organisations, for example in Australia and America among other countries.

We are members of the umbrella groups European Organisation for Rare Diseases (Eurordis), a non-governmental organisation driven by patient groups to actively support research into rare diseases, and the European Federation of Neurological Associations, which brings together neurological patient advocacy to work with other associations in the field of neurology.

 

 

Euro-ataxia is also affiliated with the European Reference Network for Rare Neurological Diseases (ERN-RND). This is an EU-funded initiative with the aim of creating a network of collaborating specialist centres within EU members states that pool expertise and help to ensure that knowledge is shared.