euro-ataxia activities

One of the main aims of euro-ataxia is to
accelerate research and treatments for people with ataxia. This co-ordinated effort between our member organisations supports research in a number of ways, such as providing patient input and advice to research studies and assisting in recruitment of participants to trials. 

Over the years euro-ataxia have provided support for European network projects and have had an advisory role by being on steering comittees on research studies e.g. FP7 European Commission Funded Project on cerebellar ataxias. 

Euro-ataxia is delighted to be now partnering with two newly funded European network projects on the ataxias. These projects have just been awarded funding by the European Commission and euro-ataxia will play an active role to esnure their success:

-European SCA3/Machado Joseph disease initiative (ESMI): This project will involve 800 patients with spinocerebellar ataxia type 3 from seven European Centres and will involve creating a database with brain imaging scans, standardised clinical assessments and blood samples. This will enable researchers to find information on the progression of the disease and reactions to treatments. This research will be coordinated at the German Centre for neurodegenerative disease in Bonn, Germany.

-Preparing for therapies in autosomal recessive ataxias: This project involves seven centres accross Europe and one in Canada. The aim is to develop a large registry of autosomal recessive cerebellar ataxia patients to identify any 'markers' which can indicate whether clinical trials are effective. In addition, it will also help to identify novel mutations or genes which cause recessive cerebellar ataxias, aiding future diagnoses. Lastly, the team (based at the University of Tubingen, Germany) will be focusing in on ataxia with Coenzyme Q10 deficiency and ARSACS to test potential drugs in animal models. This multi-faceted, transcontinental trial is expected to produce some very interesting information which can be used to shape future human trials.

Click here for reserach updates of the 2016 euroataxia annual conference

Click here for details of the 2015 International Ataxia Research Conference

For more information on the latest ataxia research, take a look at our member pages and you can also look at our list of suggested websites including other ataxia charities and other useful resources.

If you are a researcher from academia or industry and you are interested in contacting us to find out more about how we could help you, please email research@ataxia.org.uk