Event

International Euro-ataxia Research Conference – 15-16 November 2024, London   

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The International Euro-ataxia Conference is an annual event that aims to promote global research on all ataxias and improve networking among European and international ataxia Patient Organisations.  The 2024 conference was held in London from 15-16 November 2024. The conference was organised by Euro-ataxia and hosted by Ataxia UK. Patient groups from around the world …

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Highlights of the International Congress for Ataxia Research 2024

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The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was organised by Ataxia UK, the National Ataxia Foundation, the Friedreich’s Ataxia Research Alliance, and the Ataxia Global Initiative. This was the biggest ICAR yet, with 600 in-person attendees and 50 attending online from 32 countries, including researchers, …

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Ataxia patient organisations united at the 2024 Euro-ataxia annual conference 

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The 2024 Euro-ataxia conference took place in London on 15th-16th November, organised by Ataxia UK. The conference was a great success; fourteen ataxia patient groups, as well as researchers and pharmaceutical representatives gathered to share best practice in healthcare and research.   Talks included updates from clinical trials, patient group presentations, and panel discussions. On the …

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Crowd

Reflecting on the 7th International ARSACS Symposium 2023

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The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical students, patients and their families. The event was an opportunity to hear about the latest advancements in ARSACS research and build upon knowledge to lead …

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PROSPAX annual meeting

PROSPAX hosts 2023 annual meeting in Turkey

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On 22nd and 23rd June 2023, the PROSPAX consortia held their annual meeting at the Rahmi M. Koç Museum in Istanbul, Turkey. The PROSPAX project aims to study the progression of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) and Spastic Paraplegia 7 (SPG7) over time; from the molecular to the clinical level, including brain imaging, …

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Speaker

Ataxia UK hosts first-ever event for UK-based researchers

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On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited to welcome almost 50 attendees, including researchers, clinicians, Ataxia UK representatives and two people with ataxia. Representatives from research teams across the UK attended, including the three Ataxia centres in London, Sheffield, and Oxford. We invited participants to present …

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