On October 28th-29th 2025, Euro-ataxia hosted the International Ataxia Patient Conference in Amsterdam. This two-day event was attended by representatives from 18 ataxia patient organisations from Europe and North America. We were also joined by representatives from six pharmaceutical companies, and a number of ataxia researchers. We heard updates on clinical programmes on a range […]
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On 7th and 8th May, Ataxia UK’s Research Communications Officer, Scarlett Parr-Reid, attended Beacon for Rare Diseases and Remedi4All’s second International Drug Repurposing Conference (IDR25), held in Amsterdam. Drug repurposing involves finding new therapeutic uses for drugs that are already approved for use in other conditions. One example of this which was showcased at IDR25
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The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was organised by Ataxia UK, the National Ataxia Foundation, the Friedreich’s Ataxia Research Alliance, and the Ataxia Global Initiative. This was the biggest ICAR yet, with 600 in-person attendees and 50 attending online from 32 countries, including researchers,
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The 2024 Euro-ataxia conference took place in London on 15th-16th November, organised by Ataxia UK. The conference was a great success; fourteen ataxia patient groups, as well as researchers and pharmaceutical representatives gathered to share best practice in healthcare and research. Talks included updates from clinical trials, patient group presentations, and panel discussions. On the
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The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical students, patients and their families. The event was an opportunity to hear about the latest advancements in ARSACS research and build upon knowledge to lead
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On 22nd and 23rd June 2023, the PROSPAX consortia held their annual meeting at the Rahmi M. Koç Museum in Istanbul, Turkey. The PROSPAX project aims to study the progression of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) and Spastic Paraplegia 7 (SPG7) over time; from the molecular to the clinical level, including brain imaging,
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On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited to welcome almost 50 attendees, including researchers, clinicians, Ataxia UK representatives and two people with ataxia. Representatives from research teams across the UK attended, including the three Ataxia centres in London, Sheffield, and Oxford. We invited participants to present
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