Ataxia UK has worked closely with the London Ataxia Centre researchers and other experts on a research study assessing the impact of specialist ataxia centres in Europe. This was part of the Value of Treatment (VoT) project supported by the European Brain Council, a non-profit organisation which promotes brain research to improve the lives of […]
The PROSPAX (PROgression chart of SPAstic ataXias) project focuses on ARSACS and SPG7, and is a collaboration between neurologists in several sites across Europe and Canada. The overall aim is to gain a better understanding of how spastic ataxias progress over time to prepare well-designed treatment trials for these conditions, that will be applicable to many of the >100 other
The PROSPAX (PROgression chart of SPAstic ataXias) project is a collaborative effort between neurologists across several sites throughout Europe and Canada. The aim is to better understand how spastic ataxias progress over time to prepare well-designed treatment trials for these conditions. This is called ‘trial-readiness’. The study which focuses on Autosomal Recessive Spastic Ataxia of
Ataxia UK worked closely with the London Ataxia Centre researchers and other experts on a research study assessing the impact of Specialist Ataxia Centres in Europe. This was part of the Value of Treatment (VOT) project supported by the European Brain Council, a non-profit organisation which promotes brain research to improve the lives of Europeans
Quality of care is higher in Specialist Ataxia Centres, European study finds Read More »
The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical students, patients and their families. The event was an opportunity to hear about the latest advancements in ARSACS research and build upon knowledge to lead
Reflecting on the 7th International ARSACS Symposium 2023 Read More »
On 22nd and 23rd June 2023, the PROSPAX consortia held their annual meeting at the Rahmi M. Koç Museum in Istanbul, Turkey. The PROSPAX project aims to study the progression of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) and Spastic Paraplegia 7 (SPG7) over time; from the molecular to the clinical level, including brain imaging,
PROSPAX hosts 2023 annual meeting in Turkey Read More »
On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited to welcome almost 50 attendees, including researchers, clinicians, Ataxia UK representatives and two people with ataxia. Representatives from research teams across the UK attended, including the three Ataxia centres in London, Sheffield, and Oxford. We invited participants to present
Ataxia UK hosts first-ever event for UK-based researchers Read More »
