The European PROSPAX Consortium have shared results from their 8-week remote study of the SPAX smartphone app for tracking symptoms in spastic ataxias. About the PROSPAX project The PROSPAX consortium of patient groups, researchers and clinicians across Europe and Canada (including the UK), set up the PROSPAX project to study the progression of spastic ataxias […]
Researchers Prof Bart van de Warrenburg, Dr Roderick Maas and Kristofoor Leeuwenberg at Radboud University Medical Center in the Netherlands have recently published a paper in the journal Cerebellum on their work exploring the feasibility of the Goal Attainment Scale (GAS) in Spinocerebellar Ataxia Type-3 (SCA3), as part of the SIMPATHIC research project. The SIMPATHIC
The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical students, patients and their families. The event was an opportunity to hear about the latest advancements in ARSACS research and build upon knowledge to lead
Reflecting on the 7th International ARSACS Symposium 2023 Read More »
